Dr. Montoya CFS Stanford Study Recruiting: Official Stanford Ad

Dr. Jose G. Montoya, Associate Professor of Medicine at Stanford, is conducting a study looking for pathogens that may be associated with

Chronic Fatigue Syndrome.

He is looking for patients with CFS who live in the San Francisco Bay Area to participate in the study.

Participation in the study involves doing a

20-minute phone screening interview.

If you are eligible, you will be invited to have a

60-minute study visit,

including a blood draw.

There is no cost to participate in the study.

You will not receive any benefit from participation in this study, other than contributing to research.

The results of the blood tests will be available to you within 12 months, but they are for research purposes only.

If you are interested in participating or have any questions, please contact the study coordinator,

Jane Norris, at (650) 723-8126.

For general information about participant rights,

contact 1-866-680-2906.

*** End of official Stanford ad ***

For more information on the Stanford study, please see my post Dr. Montoya CFS Stanford Study: Update.

This entry was posted in ME/CFS: The Science and tagged , , , , , , . Bookmark the permalink.

9 Responses to Dr. Montoya CFS Stanford Study Recruiting: Official Stanford Ad

  1. leelaplay says:

    Thanks very much for this update. I will share.

    leela

  2. Julia Hugo Rachel says:

    Dear Sick and Tired:

    I find it interesting that you do not understand why this partiular study is taking its’ time in the selection process. Due diligence is imperative within the science world in order to A) be taken seriously; B) Publish viable and valid scientific studies and C) turn a theory & hypotheses into a fact.

    This study is doing an excellent job of slection based on patient chorts, geographical range and narrowing a subset down which has never been defined thus far for CFS. They are also working to prove viruses and pathogens DO exist within CFS subsets and that CFS is biological based.

    Perhaps you are correct in your assumption that this study is going too slow and not trying hard enough. The staff and scientists are working round the clock on this. However, perhaps you could do a much better job….funding this study….getting the appropriate cohorts together….putting together scientific and administrative teams and percuring a lab and all the necessary hoops to jump through to get this done. I do believe you should do this study as your ideas on how it should be done are astounding. I say….if you are going to launch missiles at a study…please go do the study better before you push th “launch button”.

  3. Dear Julia,

    Thanks for taking the time to comment. I am sorry my post upset you.

    I am the first one to admit that I am not a scientist and do not know all that is involved in scientific research. I also couldn’t agree with you more on making sure that the results of this study will hold up to scrutiny. I definitely want them to take all the time they need to design the study correctly, to use proper methods, and to analyze the results carefully. The last thing anybody wants is a study that is not waterproof, especially given that it involves XMRV.

    I was merely expressing my frustration with what, to me, seems like slow progress in recruiting for the study. It strikes me as odd that I live in the area, but never heard of it until I found out about it recently in one of the online forums. Patients who are not connected to the ME/CFS community simply don’t know about it and that seems like a missed opportunity. This could simply be a result of the fact that the study can’t allocate more money to its coordination and if that’s the case, I am sure everybody would understand. Something tells me that there could also be some complicated internal Stanford politics/procedural rules involved here that outsiders are not privy to. I think some communication with the ME/CFS community about these issues might go a long way in addressing the frustration that’s out there.

    Of course, it is also possible that patient recruitment is not the pacing item (no pun intended) here at all, so that more aggressive recruitment is simply not necessary. I don’t know. I was simply trying to do my part in helping out with finding participants.

  4. Julia Hugo Rachel says:

    Your post did not upset me in the least. I replied to words you wrote.

    I can not speak for Stanford, but do know they sent out letters to hundreds of not thoudands of people at the launching of this study. I was one of them. This study was published and circulated over a year ago and has past the stage of infancy and is now on “its” way. News of the study was spread amongst Facebook as well as the other major websites.

    I trust the folks working on this study to garner the correct amount of patients and the type pf patients needed to perform their task at hand.

    I have no idea where you are getting your theories about “internal politics” at Stanford but that is a pretty strong statement to make publically. Especially for a team that has gone above and beyond in helping CFS patients. These sort of “assumptions” in my mind, need not be aired in public.

    All The Best,
    JuliaHugoRachel

    • I am glad to hear that you are not upset, Julia!

      It seems to me that you misinterpreted my comment about internal Stanford politics. I was simply wondering whether there are internal rules or politics regarding advertising for the study that Dr. Montoya and his group have no control over, which would not be atypical for a big institution, such as Stanford University.

      I have the utmost respect for Dr. Montoya and his team, but I do not subscribe to the notion that people I respect are off-limits for discussion.

  5. Yvonne Power says:

    I was very ill with a virus in 2008 and have had the symptoms of M.E/Chronic Fatigue since. I have had periods of being completely bed ridden and so weak that i could not speak. My G.P has finally agreed to refer me to a Specialist Clinic where I hope i will get a diagnosis. However, if you are still looking for Volunteers for your Research i would like to be a part of your trials. I live in London, England so i am not sure if i am logistically suitable. I would very much appreciate any help or information on the experiences of being diagnosed and the best way to get a diagnosis.

    Kind Regards,

    Yvonne Power

    • Dear Yvonne,

      Thanks for reaching out to me. I am very sorry you’e been so sick!

      Unfortunately, the trial that Stanford University is doing right now (I am not connected to Stanford or the trial in any way, just trying to get the word out) is limited to residents of the San Francisco Bay Area.

      I know how hard it is for patients in the UK to receive proper medical care. I don’t know of any doctor in the London area who specializes in ME/CFS, but you could try and contact Dr. Myhill in Wales who might be able to refer you to a specialist in your area. Her contact information can be found on her website:

      http://www.drmyhill.co.uk/wiki/How_to_contact_us

      Good luck and best wishes!

  6. Pingback: Dr. Montoya Stanford Study: Update | Thoughts About ME

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