Category Archives: Uncategorized

Happy New Year!

Some of you have sent me messages asking how I am doing after the battery of tests I have had at the end of last year. I am really touched by the way people in the ME community look after, … Continue reading

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What To Do When Your Friend Has An Invisible Illness—ME/CFS? (From Get Well From ME)

More from Giles Meehan at Get Well From ME.  This time, Giles talks about “What To Do When Your Friend Has An Invisible Illness – ME/MECFS/CFS.” Here are some of Giles’ words that resonated with me the most: “The worst thing … Continue reading

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Sinking Feeling: Another Study Doesn’t Find XMRV or Other MLV-Related Viruses in ME/CFS Patients

University of Utah’s Dr. Singh et al. found no XMRV or other MLV-related viruses in a study involving 100 ME/CFS patients and 200 controls from the same geographic area (Salt Lake City) and using molecular, serological and viral replication assays. I … Continue reading

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Another reminder …

… that being able to have a baby despite ME/CFS makes me one of the lucky ones. A video from the CFIDS Association of America: “What would you do if you were completely well tomorrow?”.

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Welcome!

“I am sick and tired of always being sick and tired.”  This is the refrain of an Anastacia song that was played all the time in 2005 on a San Francisco dance music radio station (my favorite station then) that … Continue reading

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