In the Press/Testimony

Media Coverage:

Chronic fatigue patients frustrated with FDA–Erin Allday (San Francisco Chronicle, February 15, 2013)

FDA Drug Development Workshop: Part Two–Gabby Nielk (Phoenix Rising, May 13, 2013)

FDA’s CFS/ME Drug Development Workshop: Day One–Erica Verrillo (ProHealth, May 20, 2013)

FDA Holds Public Workshop on Drug Development for ME/CFS: Day One–Erica Verrillo (CFS Treatment Guide, May, 22, 2013)

“The Bar Has Been Raised” – CFSAC Spring 2013, Day One–Mark Berry (Phoenix Rising, May 27, 2013)

Chronic Fatigue Syndrome: More Than Just Being Fatigued–Darcy Chappel (Yahoo! Voices, July 27, 2013)

IOM Accused of Bias: Burmeister Calls for Investigation (ProHealth, November 13, 2013)

Federal Lawsuit Filed Against HHS and NIH Over IOM “Study” (ProHealth, January 9, 2014)

How “Chronic Fatigue Syndrome” Obscures a Serious Illness–David Tuller (BuzzFeed, January 27, 2014)

CFS Patients War Against Controversial U.S. Health Research Plan–Penny Swift (Liberty Voice, February 8, 2014)

Burmeister Wins Lawsuit: Court Rules Government Must Produce IOM Documents (ProHealth, September 4, 2014)

Burmeister Wins Lawsuit: Court Rules Government Must Produce IOM Documents–Erica Verrillo (CFS Treatment Guide, September 5, 2014)

Legal Win for ME patient in the US–Rusty (Shout Out About ME, September 10, 2014)

Public Testimony:

Ampligen: East Germany All Over Again— CFSAC Public Comment (CFSAC website, October 3-4, 2012)

My Oral Testimony at the AAC Meeting Regarding Ampligen on December 20, 2012–Cort Johnson (Health Rising, December 20, 2012)

Public Comment at FDA Stakeholder Meeting, April 25, 2013

My Written May 2013 CFSAC Testimony (May 22, 2013)

My Oral May 2013 CFSAC Testimony (May 22, 2013)

My December 2013 Video CFSAC Testimony (December 11, 2013)

My IOM Testimony (January 27, 2014)

My Oral June 2014  CFSAC Testimony (June 16, 2014)

Edward Burmeister’s Oral June 2014 CFSAC Testimony Presented by Jeannette Burmeister (June 16, 2014)


Comments on Media Articles:

The Secret To Healing From Chronic Fatigue Syndrome–my comment on Karen Cripps (Psychology Today, May 6, 2012)

Patient Advocates Work Better if They Speak FDA’s Language–my comment on David Pittman (MedPage Today, January 11, 2013)



Thunderclap: Stop the IOM! Adopt the CCC!–Jeannette Burmeister (May 5, 2014, Social Reach: 127,555)


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