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Tag Archives: CFSAC
Inquiring Minds Want to Know: Who is Behind the IOM FAQs?
Today, somewhat mysterious—and maybe (based on the quality and the formatting) hastily drafted—FAQs regarding the IOM contract (“FAQs”) appeared on the Internet. I say mysterious because the authorship of these FAQs is unclear. Is this statement an official pronouncement of … Continue reading
Posted in Uncategorized
Tagged CAA, CFIDS, CFS, CFSAC, CFSAC Charter, CFSAC listserv, Chronic Fatigue Syndrome, Conflict of Interest, Daniel Levinson, Dr. Kenneth Shine, FAQs, HHS, Inspector General, IOM Contract, Kate Meck, ME, ME/CFS, ME/CFS Diagnostic Criteria, Myalgic Encephalomyelitis, PANDORA, Request to Investigate Conflict of Interest, Sebelius, Termination for Convenience
6 Comments
My Oral May 2013 CFSAC Testimony
My name is Jeannette B. I am relatively new to the advocacy world and I don’t have all the Washington insider lingo down yet. So, instead of “FDA” or “NIH,” I will probably say “the FDA” or “the NIH.” And since … Continue reading
My Written May 2013 CFSAC Testimony
CFSAC Meeting May 2013 Public Comment by Jeannette B., Attorney at Law My name is Jeannette B. I have been sick with ME for more than seven years. I appreciate the opportunity to address the committee today. I attended the … Continue reading
Posted in Uncategorized
Tagged Ampligen, CFS, CFSAC, CFSAC May 2013, Chronic Fatigue Syndrome, Dr. Dan Peterson, Dr. Enlander, Dr. Klimas, Dr. Kogelnik, Dr. Lapp, FDA, Kweder, ME, ME/CFS, Myalgic Encephalomyelitis, Theresa Michele
7 Comments
November 2013 CFSAC Meeting: 3 Weeks before Meeting, Information for Patients Still Outstanding
I sent the following email inquiring about the November 2013 CFSAC meeting, which is scheduled for November 12th and 13th, 2013, less than 3 weeks from now. I’d encourage other patients who have questions about the upcoming meeting to email … Continue reading →