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Monthly Archives: June 2011
MECFS Alert Episode 2
Here is the second episode of MECFS Alerts by our fried, Llewellyn King. This is one of the worst days I have had cognitively and I am barely able to form a thought and type this. So, I am just … Continue reading
Posted in Uncategorized
Tagged CFS, Chronic Fatiigye, Episode 2, Funding, Llewellyn, ME/CFS, MECFS Alert, NIH
3 Comments
Mildly Disruptive
ME/CFS desperately needs media coverage to raise awareness, but almost all reporting on the illness hurts the patient community because it grossly understates the seriousness of the disease. This Today Show segment of June 20, 2011 on ME/CFS is no … Continue reading
Posted in Uncategorized
Tagged CFS, Chronic Fatigue Syndrome, Dr. Nancy Snyderman, ME/CFS, Today Show
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Ampligen Treatment Study (AMP 511) starting in San Francisco Bay Area
We are a group of ME/CFS patients coordinating contact information for those interested in receiving Ampligen in the San Francisco Bay Area in California. Sites administering the drug under the FDA approved open label AMP 511 study protocol have dwindled to Dr. Peterson in … Continue reading
Posted in Uncategorized
Tagged AMP 511, Ampligen, Ampligen Study, Bay Area, CFS, Chronic Fatigue Syndrome, ME/CFS, San Francisco
2 Comments
Llewellyn King Continues to Fight for Us: MECFS Alert Episode 1 (Parts 1 and 2)
Llewellyn King, a Washington columnist and executive producer and host of “White House Chronicle” on PBS, and his friend, Deborah Waroff, a New York writer and ME/CFS sufferer for 22 years, have started a new web-based TV show about Chronic Fatigue Syndrome, … Continue reading
Successful ME/CFS Demonstration at HHS San Francisco
Rivka Solomon who had organized a demonstration of patients with ME/CFS at the U.S. Department of Health and Human Services (HHS) in Washington D.C. on May 10, 2011 was, together with Bobbi Ausubel, also the organizer of the equally successful demonstration … Continue reading
Posted in Uncategorized
Tagged Andy Au, CFS, Demonstration at HHS, ME/CFS, Rivka Solomon, San Francisco, Susan Kreutzer
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Thoughts About M.E. 