Monthly Archives: June 2011

MECFS Alert Episode 2

Here is the second episode of MECFS Alerts by our fried, Llewellyn King. This is one of the worst days I have had cognitively and I am barely able to form a thought and type this. So, I am just … Continue reading

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Mildly Disruptive

ME/CFS desperately needs media coverage to raise awareness, but almost all reporting on the illness hurts the patient community because it grossly understates the seriousness of the disease. This Today Show segment of June 20, 2011 on ME/CFS is no … Continue reading

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Ampligen Treatment Study (AMP 511) starting in San Francisco Bay Area

We are a group of ME/CFS patients coordinating contact information for those interested in receiving Ampligen in the San Francisco Bay Area in California. Sites administering the drug under the FDA approved open label AMP 511 study protocol have dwindled to Dr. Peterson in … Continue reading

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Llewellyn King Continues to Fight for Us: MECFS Alert Episode 1 (Parts 1 and 2)

Llewellyn King, a Washington columnist and executive producer and host of “White House Chronicle” on PBS, and his friend, Deborah Waroff, a New York writer and ME/CFS sufferer for 22 years, have started a new web-based TV show about Chronic Fatigue Syndrome, … Continue reading

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XMRV Tests Now Offered by WPI Lab, Not VIP Dx Anymore

The commercial XMRV tests (viral culture and serology assay) that have been performed by VIP Dx will no longer be offered by VIP Dx, but by UNEVX, a wholly owned lab of the Whittemore Peterson Institute.  The serology results will take up … Continue reading

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Voices from the Shadows

Release Date Autumn 2011. Invitation to show at a prestigious international film festival. Genre Documentary About http://vimeo.com/24683179 Description A compassionate and moving exposé, bearing witness to the devastating consequences of psychiatric prejudice and medical ignorance about one of the most … Continue reading

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Llewellyn King gets it!

I don’t know why Llewellyn King, executive producer and host of “White House Chronicle” on PBS, gets ME/CFS as if he was a sufferer himself, but he does. I just read his latest piece covering the illness, Chronic Fatigue Syndrome is … Continue reading

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Successful ME/CFS Demonstration at HHS San Francisco

Rivka Solomon who had organized a demonstration of patients with ME/CFS at the U.S. Department of Health and Human Services (HHS) in Washington D.C. on May 10, 2011 was, together with Bobbi Ausubel, also the organizer of the equally successful demonstration … Continue reading

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