Reblogging this must-read post by Utting-Wolff Spouts exposing today’s “ethically indefensible” piece by Sarah Knapton, science editor at The Telegraph, about the follow up to the scientifically disturbing PACE trial.
When I first heard The Telegraph had featured an article concerning a follow-up study of the notorious PACE trial I was inclined to ignore it1. I’ve long become used to the appalling coverage of ME by the British media2 and felt I didn’t need to read any more disinformation disseminated via the Science Media Centre. However, I cracked and had the misfortune to read an article written by Sarah Knapton that is the worst I have seen in the thirty years I have been ill with this disease, which considering the competition is an impressive achievement1.
The article clearly implies ME is a non-illness, the suggestion in the headline that a bit of positivity and exercise could cure sufferers merits no other interpretation. One wonders what spin was put on the latest study by the SMC, as the results of this research bear no similarity…
View original post 1,002 more words
Thank you, Jeannette for posting this excellent article by Utting-Wolff Spouts on the FRAUDulent PACE trial. What a DISgrace!
Thank you. Next the London “experts” will tell us to go back to bloodletting and leeches! The Knapton article is parroting the British PACE study “findings.” I find that it should be called the so-called Science Media Center, when this study is not scientifically based. It’s absurd.
Thankfully, David Tuller has written a several-part expose of the PACE study and its findings.
Also, the NIH just announced it would start a new study of people with ME/CFS, given the IOM’s report and recommendations. I’m sure it’s also due to the recent articles in the Washington Post, one by a former report for the paper and the other about Whitney Dafoe, who is extremely sick from this disease. His father, Ron Davis, a molecular geneticist at Stanford, is starting his own study. Also, an ME/CFS sufferer wrote an article published in The Atlantic.
The NIH also says the budget will be increased, but until those funds are publicized, I won’t bet the farm on it.
I’m curious to see what actually happens with the NIH and its study and if money is made available in reality.
Hello, I’ve also had M.E. for 30 years…..and am presently in bed after a relapse once more. I had Acupuncture treatment for a nerve pain problem and its jinxed everything, although it has helped the nerve pain! Thank you for writing a post about that article in The Telegraph. I’d heard about it but to be honest like you did at first, I’ve purposely not read it. I simply can’t face more castigation. Those people involved get me mad as wasp in a jam jar !! I wouldn’t wish ill of anyone in this world but it seems a long long long wait until…….’Every little dog has it’s day.’ with this illness.
Hope you can understand my garbled message?
Sending kind regards from England,