-
Join 1,461 other subscribers
-
Recent Posts
- A New Direction
- The #CoyneEffect: Is the ME Community Stepping Up or Backing Down?
- Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability Benefits
- Standing Up to Coyne and Against Unfair Treatment of ME Advocates
- Has the “Coyne of the Realm” been devalued?
- Brian Walitt’s Radical Bias: Disorders of Subjective Perception, ME/CFS as Normal Life Experience?
- Deadline for Comments on Proposed ERISA Disability Regs Fast Approaching: Additional Guidance
- Proposed ERISA Disability Regs: Instructions and Sample for Public Comments
- Department of Labor Proposes Lowering Bar for ERISA Disability Claims, Requests Public Comments
- The Scientifically Challenged UK Media Strikes Back
Archives
- September 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- October 2015
- September 2015
- August 2015
- April 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- May 2013
- April 2013
- February 2013
- January 2013
- December 2012
- September 2012
- May 2012
- February 2012
- November 2011
- October 2011
- August 2011
- July 2011
- June 2011
- May 2011
- April 2011
Blogs
- Be a light, CFS Awareness
- CFS Central
- CFS Patient Advocate
- CFS Treatment Guide
- dx revision watch
- Just ME
- No Poster Girl
- Occupy CFS
- Onward Through the Fog
- Shoutout About ME
- Slightly Alive
- The CFS Report
- The Kafka Pandemic
- The New Ampligen Diaries
- Twenty Years and Counting
- Utting-Wolff Spouts
- Valerie Eliot Smith
- X Rx Blog
Disability Resources
Forums
Severe M.E.
Support Groups
Websites
Tag Archives: ME/CFS Experts
Sebelius “Responds” to the Experts: “You Mean This Is Not What You Wanted?”
On November 12, 2013—as I found out just yesterday—more than seven weeks after the original open expert letter was sent to her, Secretary Sebelius finally provided a brief “response” mirroring the talking point provided in the FAQs of November 15, … Continue reading
Overwhelming, Growing Support of ME Experts by Advocates in Opposition to IOM Contract: Advocates’ Open Letter Re-Sent With Additional Signatures
As was the case with the experts’ open letter to Secretary Sebelius—which was first published on September 23, 2013 and then updated on October 25, 2013—the October 28, 2013 advocates’ letter now has been updated with additional signatures and re-sent … Continue reading
Posted in Uncategorized
Tagged Canadian Consensus Criteria, CCC, CFS, Chronic Fatigue Syndrome, DHHS, HHS IOM Contract, IOM Contract, IOM Controversy, ME, ME/CFS, ME/CFS Advocates, ME/CFS Experts, ME/CFS Open Letter to Secretary Sebelius, Myalgic Encephalomyelitis, Open Advocates' Letter, Secretary Sebelius, Tweets, Twitter Campaign
19 Comments
66 ME/CFS Advocates Send Letter to Secretary Sebelius in Support of their Experts
Today, 66 ME/CFS advocates sent a letter to Department of Health and Human Services Secretary Kathleen Sebelius, joining 50 ME/CFS experts in calling for the adoption of the Canadian Consensus Criteria (CCC) as the definition of the disease as well … Continue reading
Posted in Uncategorized
Tagged Canadian Consensus Criteria, CCC, CFS, Chronic Fatigue Syndrome, Dr. Anthony Fauci, Dr. Francis Collins, Dr. Harold Varmus, Dr. Harvey Fineberg, Dr. Howard Koh, Dr. Margaret Hamburg, Dr. Richard Kronick, Dr. Thomas Frieden, Dr. Wanda Jones, HHS IOM Contract, IOM, ME, ME/CFS, ME/CFS Advocates, ME/CFS Experts, Ms. Carolyn W. Colvin, Ms. Marilyn Tavenner, Myalgic Encephalomyelitis, Secretary Sebelius, Senator Jerry Moran, Senator Tom Harkin
12 Comments
Thoughts About M.E. 