Tag Archives: Open Expert Letter

16 Additional ME/CFS Experts Added Signatures to Open CCC/IOM Letter to Sebelius

Posted on October 26, 2013 by Jeannette Burmeister

On September 23, 2013, thirty five ME/CFS experts sent an open letter to HHS Secretary Sebelius informing her that they have come to a consensus about the use of the Canadian Consensus Criteria (CCC) as the official disease definition and … Continue reading →

Posted in Uncategorized | Tagged 16 Additional Signatories, Canadian Consensus Criteria, CCC, CFS, Chronic Fatigue Syndrome, HHS IOM Contract, IOM, ME, ME/CFS, Myalgic Encephalomyelitis, Open Expert Letter, PANDORA, Secretary Sebelius | 13 Comments

Perfect is the Enemy of Good

Posted on October 2, 2013 by Jeannette Burmeister

[Disclaimer: I am not in very good shape and I do not, at the moment, have the stamina some other advocates do. But the recent developments are so monumental that I felt I nevertheless should give my impressions as best … Continue reading →

Posted in Uncategorized | Tagged Canadian Consensus Criteria, CCC, CFS, Chronic Fatigue Syndrome, chronic multi-system illness, Dr. Bateman, Fred Friedberg, Gulf War Illness, GWI, HHS, IOM, ME, ME/CFS, Myalgic Encephalomyelitis, Open Expert Letter, Secretary Sebelius, SMI, Suzanne Vernon | 21 Comments

Tag Archives: Open Expert Letter

16 Additional ME/CFS Experts Added Signatures to Open CCC/IOM Letter to Sebelius

Perfect is the Enemy of Good

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