“A film about life with M.E., the most prevalent and devastating disease your doctor has never heard of.”
Please go to the Kickstarter page to donate to this important film project.
From the film’s website, which has more information about the documentary:
Canary in a Coal Mine follows the lives of several remarkable people living with a Myalgic Encephalomyelitis (“Chronic Fatigue Syndrome”), a mysterious and devastating disease.
They are forced to leave careers they loved, abandon the dream of having children, or face the prospect of being locked away forever in their homes and bedrooms. Worse still, most doctors, and sometimes those closest to them, don’t even believe they’re really ill.And yet, surprising things can sometimes grow from these dark places. How would you begin to nourish your body if every food you ate, every object you touched had the capacity to cripple or heal you? How would you fill your life, and what would you toss aside, if you only had three hours a day to live it? What worlds would unfold before your eyes if everything you knew suddenly came to a grinding halt?
Canary in a Coal Mine is about the human consequences of a medical system that is ill-equipped to treat an illness that challenges its every assumption, the danger of ignorance, and the power of a name. It’s the story of a community of millions that to most of the world is invisible.”
Everyone should see the trailer. This is an amazing project!
If you never donated before, this is THE moment to do so for the first time.
If this film gets enough funding, it will truly be an incredible VISIBLE testimony of what ME is in real life.
I was truly in awe yesterday when I saw the trailer, then went to the facebook page and then to Kickstarter. Never seen such a well thought and inventive project like this before …
I imagine that one day in the future, someone somewhere in Hollywood will produce a block buster of a movie about ME, along the lines of ‘Awakenings’ with Robin Williams.
Once the truth has been discovered and the illness legitimised, there will be producers clambering to tell the story and big movie stars desperate for the lead roles – which of course will be very humbling and challenging for them – she says, tongue in cheek!!
Meanwhile, in the real world, real films about real people fighting a real illness in a world where mostly no one knows or cares is another matter.
I’d love to see this film made. This should be the film that tells our story. This is how people should come to know the atrocity that is our struggle.
This is an amazing project. Seems like it’s adeptly made with a 21st century sensibility for 21st century consumption. Thanks so much for connecting me and all of us to news we might not have seen otherwise. You are quickly becoming my main source of CFIDS news, Jeanette, fast replacing the CAA.
Thanks for this message and news of this film project. I hope it happens; that would only help us.
It’s inspiring to see so many people who have been supporting and sharing news of Canary in a Coal Mine. I am currently writing an article about the documentary and how it is affecting the community of CFS/M.E patients, please get in touch if you would be interested in speaking with me further!