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Tag Archives: Case Definition
Call for Investigation by the Inspector General of the IOM’s Conflict of Interest With Respect to ME/CFS
[Updates: 2013/11/17: Supplemental Request for Investigation by OIG: Did DHHS Violate its No-Bid-Contract Requirements for IOM Contract? 2014/01/08: After OIG Dodges Charge of IOM’s Conflict of Interest, Meaningful Reply Demanded 2014/04/04: IOM-OCI-OIG … OMG! 2014/05/28: OIG Fails to Investigate IOM Conflict of Interest & … Continue reading
Posted in Uncategorized
Tagged 2013, 48 C.F.R. section 9.504, 48 C.F.R. section 9.505, Bias, Case Definition, CFS, Chronic Fatigue Syndrome, Chronic Multisymptom Illness, CMI, Conflict of Interest, DHHS, Diagnostic Criteria ME/CFS, Gulf War Illness, GWI, Inspector General, Investigation, IOM, IOM CMI Report, IOM Contract, ME, ME/CFS, Mr. Daniel Levinson, Myalgic Encephalomyelitis, Open Advocates' Letter November 9, Open Experts' Letter October 25, organizational conflict of interest, Secretary Sebelius, \
47 Comments
Thoughts on the May 2013 CFSAC Meeting
I’ll have a lot more thoughts about this week’s CFSAC meeting in Washington, D.C. once I get a chance to watch the videos because I wasn’t well enough to take notes or attend (or closely follow) the entire meeting. But … Continue reading
Posted in Uncategorized
Tagged Alaine Perry, Ampligen, Bob Miller, Case Definition, CFS, Chronic Fatigue Syndrome, Dr. Elizabeth Unger, Dr. Gailen Marshall, Dr. Howard Koh, Dr. Mary Ann Fletcher, Dr. Nancy Lee, Dr. Susan Maier, Eileen Holderman, FDA, Hemispherx, May 2013 CFSAC, ME, ME/CFS, Myalgic Encephalomyelitis, NIH, out of order, Seamon Corporation, Steven Krafchick
38 Comments
DePaul University ME Study Needs Healthy Participants
I am sending the following message to my non-ME friends and I would encourage other patients to do the same. We can help out Lenny Jason and his team greatly in recruiting our healthy friends and family members. I used … Continue reading
Posted in Uncategorized
Tagged Case Definition, CFS, Chronic Fatigue Syndrome, DePaul University, ME, ME/CFS, Myalgic Encephalomyelitis, Sleep
2 Comments
Thoughts About M.E. 