Tag Archives: Jeannette Burmeister

The #CoyneEffect: Is the ME Community Stepping Up or Backing Down?

In order to fully appreciate this entry, please read “Has the ‘Coyne of the Realm’ been devalued?” If you still have steam afterwards, there is more background information in “Standing Up to Coyne and Against Unfair Treatment of ME Advocates.” … Continue reading

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Standing Up to Coyne and Against Unfair Treatment of ME Advocates

[Update 5/5/16: For context and background on Ed’s post below, please read my blog post, “Has the “Coyne of the Realm” been devalued?” It describes in detail some of Coyne’s abuse of patients in the ME community, including myself. The mistreatment seems to be ongoing, … Continue reading

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Has the “Coyne of the Realm” been devalued?

[Please also see the follow-up post by my husband, Ed Burmeister, “Standing Up to Coyne and Against Unfair Treatment of ME Advocates.”] A recent addition to the ME advocacy community, Dr. James Coyne, has been celebrated as a savior of ME … Continue reading

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Jeannette Burmeister’s IOM-Meeting Comments

IOM Meeting January 27, 2014 In-Person Comments by Jeannette Burmeister Hello.  I’m Jeannette Burmeister and I’m an attorney. I’ve heard some people at HHS are confused about patients’ deeply-felt opposition to your project.  Let me explain in simple terms why: … Continue reading

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Dr. Woodcock: Please Approve Ampligen Now!

My letter to Dr. Woodcock from earlier this week: Jeannette K. Burmeister [email] [phone] [street]                                                                                                                  [street] [city, state, zip code]                                                                                       … Continue reading

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My December 2013 Written Testimony

This includes parts I had to cut for the video testimony to stay within the 5 minutes. CFSAC Comments December 10-11, 2013 Jeannette Burmeister Attorney at Law My name is Jeannette Burmeister and I’d like to address the IOM contract. … Continue reading

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My December 2013 Video Testimony

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SF Chronicle Article on the FDA’s Denial of Ampligen

We got an article about the FDA’s denial about Ampligen on the front page of the San Francisco Chronicle’s weekend edition. I wish Dr. Montaya had framed his thoughts only positively (works in a sub-group of patients) instead of also … Continue reading

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