Tag Archives: XMRV

Llewellyn King: The Silent Suffering

Llewellyn King’s latest piece about ME, “Chronic Fatigue Syndrome: The Silent Suffering,” was published today in the Open Salon.  Mr. King, with his signature style of elegant and no-nonsense language, achieves what is so elusive for most writers: to give the … Continue reading

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Voices From The Shadows—World Premiere and Panel Discussion

“Voices from the Shadows,” a one-hour documentary about the commonplace abuse and neglect of gravely ill ME patients, including children, by the British government and medical establishment, most notably psychiatrists, and the misportrayal of ME* by the media, premiered on … Continue reading

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UNEVX’s XMRV test takes longer than initially announced

This is an update to my blog post of June 6, 2001 about UNEVX’s XMRV test: Back then, the lab told me that the serology results will take up to 8 weeks and the culture results will take up to … Continue reading

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XMRV Tests Now Offered by WPI Lab, Not VIP Dx Anymore

The commercial XMRV tests (viral culture and serology assay) that have been performed by VIP Dx will no longer be offered by VIP Dx, but by UNEVX, a wholly owned lab of the Whittemore Peterson Institute.  The serology results will take up … Continue reading

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Llewellyn King gets it!

I don’t know why Llewellyn King, executive producer and host of “White House Chronicle” on PBS, gets ME/CFS as if he was a sufferer himself, but he does. I just read his latest piece covering the illness, Chronic Fatigue Syndrome is … Continue reading

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Summary of the 2011 Invest in ME Conference in London by Mike Turris

Mike Turris took some great notes at the Invest in ME conference that took place in London on May 20, 2011 . He was very careful not to disclose any of the information that is not supposed to be shared yet in order … Continue reading

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Dr. Teitelbaum Advertises Again on Huffington Post

Dr. Jacob Teitelbaum, MD and former ME/CFS patient, published another article on Huffington Post, XMRV Update and a Possible New Treatment for Chronic Fatigue, yesterday. This one was even more disappointing than his recent piece, which I commented on earlier … Continue reading

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Dr. Andreas Kogelnik’s Talk on Re-Evaluating Chronic Fatigue Syndrome and Immunology

This is a summary of Dr. Andreas Kogelnik’s Lunch N Learn talk “Re-Evaluating Chronic Fatigue Syndrome and Immunology” at El Camino Hospital in Mountain View on April 19, 2011. This summary mostly follows the chronological order of issues as discussed … Continue reading

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